Tristan Ashley
The ups and downs of having a premie kid (who is sooooo gonna be grounded in a few years... what am I saying, the kid already is... no leaving the nicu for him)
Tuesday, August 28, 2007
quick kid update

First cold type thing... been snotty, small fever... mom is sleepy. And the NICU reunion is Saturday...

Oh and Mary and Sandy- my PC decided to have issues so I've lost your e-mail addresses...

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link | posted by Beth at 8/28/2007 10:02:00 PM

Tuesday, June 19, 2007
Kid update

I've been a bad mommy and haven't posted an update on the boy recently.

He's out of the spica cast (and much cheering ensued).  Let's just say he was getting pretty ripe.  OK, the boy stank.  He is going to be in a brace 24 hours a day until August (but can bathe him).  Hopefully at that point he will go down to just wearing it at night.

He did have a developmental clinic appointment today.  He's doing well cognitively, hard to determine where he is physically and is a bit delayed with speech.  So left a message with his EI coordinator about getting a speech evaluation set up. 

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link | posted by Beth at 6/19/2007 11:20:00 AM

Tuesday, May 15, 2007
OK a bit late on updates

As of June 13th the boy will be out of the spica cast. Hips are healing well- will be in a brace, but I can remove it and wash him.

link | posted by Beth at 5/15/2007 11:12:00 PM

Tuesday, January 09, 2007
Brief updates

The ostomy reversal surgery was a great success. So right now we're waiting on hearing from ortho to get the hip surgeries done. He's still getting OT and PT once a week.

link | posted by Beth at 1/09/2007 01:05:00 PM

Saturday, September 16, 2006
Little Man on Logo

A few months ago I wrote about the Little Man documentary.  Logo television (channel 263 on Direct TV) is showing it over the next few days.

Little Man

Nicole Conn and her partner Gwen Baba decide to have a second child, but due to a life-threatening condition at 25 weeks of gestation, Nicholas James Baba-Conn is born 100 days too early and weighs only one pound. From his froglike legs dangle blood pressure cuffs the size of band-aids. His heart is the size of a cashew.

"little man" is the story of how a micro-preemie brought a family to its knees. Throughout his struggle for life, so struggle filmmaker Nicole Conn and political activist Gwen Baba to keep their family from disintegrating under the unrelenting stress and chaos of hospitals, emergency medical crisis and a crushing blow to trust.

Life partners strong for seven years, they and their two-year-old daughter, Gabrielle, have it all. They're on top of the world until their surrogate becomes pregnant with their son.

What do you do when a pregnancy goes bad? When a partnership is torn apart by opposing belief systems, when a small infant lives in the surreal world of the Neonatology Intensive Care Unit for 158 days? Nicholas goes through medical procedure after medical procedure - because science and medicine "can" keep a fetus alive. But at what price do we hold onto life?

Conn is obsessed by her son's need to be here. Baba is terrified that long hospital stays and the mini-hospital in their own home will erode the family to a place of no return.

Through the decisions and challenges that most will never know, we witness the very candid portrayal of a marriage perilously close to disaster. How does one couple cope with the endless medical needs of Nicholas' life and still maintain a life that resembles normal for their daughter? And will they, like their son, make it against all odds?
Sat 09/16
9:00 PM
Thu 09/21
10:00 AM
Fri 09/22
3:00 AM
Sat 09/23
11:00 PM

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link | posted by Beth at 9/16/2006 11:03:00 PM

Tuesday, September 12, 2006

T woke up at 3am... did not want to get back to sleep- so was up... at 4:30 realized it was stupid to go back to sleep for an hour & a half since he had to be at the hospital for an 8am ortho appointment. The X-ray pretty much showed that he will need hip surgery. Ortho wants to wait until after he gets the illiostomy reversed- just because going in while he still has it raises the risk of infection. Of course, need to deal with surgery since for some reason they are not doing November clinic appointments until the end of the month. I also still need to touch base with the peds since they are working on getting him synargis approval (shot to reduce effects of RSV).

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link | posted by Beth at 9/12/2006 12:05:00 PM

Monday, September 11, 2006

As of last week, Tristan is up to 19lbs, 26"

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link | posted by Beth at 9/11/2006 03:48:00 PM

Saturday, July 29, 2006
Lax on updates

Things have been a bit hectic around here lately- so here are updates in a nutshell:

  • We finally got T baptised
  • PT and OT through Early Intervention has started.  He is a bit delayed even taking into account adjusted age- but hopefully with help he will catch up soon.  It is early yet, but I am hopeful that since we've started the services as early as we did, that delays will be minimal- of course, I don't know what the future will hold and that is scary.
  • We started T on food!  (cheers all around!).  He's doing pretty good with the rice cereal- he's not too sure about the squash though.  I can't really blame him since I'm not the biggest fan of squash either.

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link | posted by Beth at 7/29/2006 10:45:00 PM

Tuesday, July 18, 2006
Report: 1 in 8 babies born prematurely - Report: 1 in 8 babies born prematurely - Jul 13, 2006

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link | posted by Beth at 7/18/2006 09:59:00 AM

Wednesday, June 28, 2006
Quick update

Up to 16lbs 4oz.
23" long
17 1/4" head

He is below the 5th percentile length wise for actual age and between the 10th and 25th percentile for weight.

We did qualify for Early Intervention service- PT and OT.  We should be hearing in the next few weeks from the service provider. 

We finally finished his room- a bit behind but we finally got it done.  In a fishy/ Finding Nemo theme.  Now waiting for Ash's grandmother and 2 nieces to come into town (we are picking them up from the airport later).  Hopefully we won't find any of the nieces underwear in the freezer (they got into a fight type thing while in TX... the younger one soaked her older sister's underwear in water and put it in the freezer)

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link | posted by Beth at 6/28/2006 06:57:00 PM

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