Tristan Ashley
The ups and downs of having a premie kid (who is sooooo gonna be grounded in a few years... what am I saying, the kid already is... no leaving the nicu for him)
Saturday, September 16, 2006
Little Man on Logo

A few months ago I wrote about the Little Man documentary.  Logo television (channel 263 on Direct TV) is showing it over the next few days.

Little Man

Nicole Conn and her partner Gwen Baba decide to have a second child, but due to a life-threatening condition at 25 weeks of gestation, Nicholas James Baba-Conn is born 100 days too early and weighs only one pound. From his froglike legs dangle blood pressure cuffs the size of band-aids. His heart is the size of a cashew.

"little man" is the story of how a micro-preemie brought a family to its knees. Throughout his struggle for life, so struggle filmmaker Nicole Conn and political activist Gwen Baba to keep their family from disintegrating under the unrelenting stress and chaos of hospitals, emergency medical crisis and a crushing blow to trust.

Life partners strong for seven years, they and their two-year-old daughter, Gabrielle, have it all. They're on top of the world until their surrogate becomes pregnant with their son.

What do you do when a pregnancy goes bad? When a partnership is torn apart by opposing belief systems, when a small infant lives in the surreal world of the Neonatology Intensive Care Unit for 158 days? Nicholas goes through medical procedure after medical procedure - because science and medicine "can" keep a fetus alive. But at what price do we hold onto life?

Conn is obsessed by her son's need to be here. Baba is terrified that long hospital stays and the mini-hospital in their own home will erode the family to a place of no return.

Through the decisions and challenges that most will never know, we witness the very candid portrayal of a marriage perilously close to disaster. How does one couple cope with the endless medical needs of Nicholas' life and still maintain a life that resembles normal for their daughter? And will they, like their son, make it against all odds?
Sat 09/16
9:00 PM
Thu 09/21
10:00 AM
Fri 09/22
3:00 AM
Sat 09/23
11:00 PM

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link | posted by Beth at 9/16/2006 11:03:00 PM

Tuesday, September 12, 2006

T woke up at 3am... did not want to get back to sleep- so was up... at 4:30 realized it was stupid to go back to sleep for an hour & a half since he had to be at the hospital for an 8am ortho appointment. The X-ray pretty much showed that he will need hip surgery. Ortho wants to wait until after he gets the illiostomy reversed- just because going in while he still has it raises the risk of infection. Of course, need to deal with surgery since for some reason they are not doing November clinic appointments until the end of the month. I also still need to touch base with the peds since they are working on getting him synargis approval (shot to reduce effects of RSV).

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link | posted by Beth at 9/12/2006 12:05:00 PM

Monday, September 11, 2006

As of last week, Tristan is up to 19lbs, 26"

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link | posted by Beth at 9/11/2006 03:48:00 PM

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