Tristan Ashley
The ups and downs of having a premie kid (who is sooooo gonna be grounded in a few years... what am I saying, the kid already is... no leaving the nicu for him)
Tuesday, January 31, 2006

Working on getting video up. Problem is that with the new camera stuff gets saved as a windvd format so until I can figure out how to make it windows friendly those won't be posted. The ones that are up are from my camera.

link | posted by Beth at 1/31/2006 11:33:00 AM

Monday, January 30, 2006

Working on getting the Tristan Gallery set up here. Trying to figure out how to convert the video I have to an internet compatible format.

link | posted by Beth at 1/30/2006 09:27:00 PM

A funny for a Monday morning.

This morning Tristan's nurse came in to check on him- well he was naked and grinning away. Apparently his hip splint became attached to the blanket. Tristan managed to not only wiggle out of the split, but his diaper as well. Oh, and he pulled the nasal candela out of his nose and had in his mouth. Needless to say, Sue had a bit of a clean up on her hands- his diaper was wet (normal for babies) but he also had peed during his attempts at freedom- so the blankets and all were a bit damp. Plus side to having the stoma bag- there was no poop for Sue to deal with. He did have a couple brady/ apnea's during the night, so they took a few cultures (thinking that the MRSA might be behind it). He's back on IV antibiotics for that, but we won't know the results until Wednesday.

link | posted by Beth at 1/30/2006 10:23:00 AM

Saturday, January 28, 2006
eye snot update

Cultures have come back and the kid has MSRA in his eye and nose. He'll be in isolation until it is kicked. Other then that he's doing fine- was up 81g. More info on MSRA (or Methicillin-resistant Staphylococcus aureus). Link 1 Link 2 Link 3

link | posted by Beth at 1/28/2006 11:55:00 AM

Thursday, January 26, 2006
eye snot

Tristan has a minor eye infection thing- they are also working on cultures from nose/ back of throat. They are giving him an antibotic for the eyes. They also moved him to yet another room. New room is supposed to be more 'isolated' (since he has the eye thing, they don't want to risk passing it on to other babies) *but* since there are some older kids in the room (a couple of babies too young I guess for PICU but older then usual NICU ages) there are a lot more people moving in and out. Tomorrow starts another rotation of attending/ fellows/ residents. Kids are assigned to color coded teams and every 4 weeks they cycle out docs.

link | posted by Beth at 1/26/2006 09:28:00 PM

Wednesday, January 25, 2006

OK, he didn't really take too much from my breast today. The first time he was somewhat sleepy and did not really 'grasp' the idea of what he was doing. At 6pm he was awake and wanting food (he *knew* it was time for food via his tube). He actually started to get the idea of what he was doing. Of course, he is slightly lazy (like all preemies who get everything handed to them) and kept giving the nurse and me the look of "What? I have to work for this??".

link | posted by Beth at 1/25/2006 07:45:00 PM

Tuesday, January 24, 2006
Various check ups

Eye doctor was in today doing the weird medieval tortures they do on premies in the NICU... So far his eyes are looking good- no damage from the oxygen. Doctor will be back in two weeks to check his eyes again. Of course with his family history, Tristan will be needing glasses at some point. With any luck he will be a bit older then his grandmother Nancy who had them at age 2. No news back from the brain scan... but as the nurses told us at sisters, they would have noticed something major on it before sending it out to be read. As the photos below show (and I apologize to all dial-up users out there), Ash got to hold and feed him today. Tristan did OK on the feedings- he eats really fast though, and he hasn't quite figured out the whole sucking and breathing thing yet, and he had a bit of spit up... but that is all within the whole weird realm of "normal" in the NICU.

link | posted by Beth at 1/24/2006 09:31:00 PM


link | posted by Beth at 1/24/2006 09:18:00 PM

Monday, January 23, 2006

He took the bottle for the first time today. 18cc out of a possible 27cc. Some drool, a bit of reflux... but all in all very impressive for first time

link | posted by Beth at 1/23/2006 07:19:00 PM

Saturday, January 21, 2006
Stopped the sprinting...

Since they stopped putting him on the c-pap they are just using the nasal. Did have a drop today when I was at the hospital- but for the most part he's stable.

link | posted by Beth at 1/21/2006 11:06:00 PM

Wednesday, January 18, 2006

up to sprinting for 6 hours a stretch now.

link | posted by Beth at 1/18/2006 01:29:00 PM

No news= good news

Not a lot to report today- sprinted for 4 hours. We are starting to experience some of the joys of being in a teaching hospital. For the most part it is good- you know that the doctors are going to be coming around twice a day- and that is doctors plural. Although it is a bit of an experience to listen to rounds being led by a scotsman and other docs being indian. Bad part is that unless they are a fellow or attending, you have take what they say with a grain of salt. Example- NP today said something about the possibility of surgery for colon repair in 8 weeks- we originally told that we needed to wait until he was much bigger before they would go back & assess the damage and hopefully it will have repaired itself. Turns out a resident and fellow were discussing the case- not sure if they were medical or surgical types though. Positive side to being at a children's hospital is that there is a greater number of docs- one of the problems with the other hospital was there was only one neonatalogist on call at one time- so it was very hard to talk to him outside of the NICU. Here we have a question and someone will come and talk to you. I did join a preemie's list over at yahoo groups. It is a mixture of sadness and joy- but it helps to see parents dealing with their toddler who was a preemie. It is also good for us to have positive support since people who have never gone through it don't know how rough it can be.

link | posted by Beth at 1/18/2006 12:09:00 AM

Tuesday, January 17, 2006
Forgot to mention yesterday

PT and OT were in to see Tristan yesterday and his range of movement in his hips is getting better.

link | posted by Beth at 1/17/2006 09:47:00 AM

link | posted by Beth at 1/17/2006 07:56:00 AM

Monday, January 16, 2006

Up to 3 hours a day now. crossing fingers that he will get better at it. He managed to 'blow out' another stoma bag. Well, not so much the bag as leaking poopie out between the skin and the adhesive... I keep reminding myself no poopie diapers, no poopie diapers, no poopie diapers...

link | posted by Beth at 1/16/2006 09:15:00 PM

Saturday, January 14, 2006
pictures from 1-14-06

link | posted by Beth at 1/14/2006 06:44:00 PM

Friday, January 13, 2006
gaining weight

Up to 3 lbs, 1 oz today. After not being sprinted for a couple days, he was sprinted for an hour today. Even though he kept trying to pull the tube out of his nose...

link | posted by Beth at 1/13/2006 11:24:00 PM

Thursday, January 12, 2006
More photos

Just click on em to see a bigger version.

link | posted by Beth at 1/12/2006 08:11:00 PM

Tuesday, January 10, 2006
Is it too early...

To put the kid in Google Gear?

link | posted by Beth at 1/10/2006 03:28:00 PM

Monday, January 09, 2006
weight up & sprinting

Weight is 2 lbs 15 oz Sprinted him for 40 minutes today. Of course didn't have the camera with us so no pictures of him with only the nose tube.

link | posted by Beth at 1/09/2006 10:39:00 PM

Sunday, January 08, 2006
not much to update

Tristan is doing well- not a whole lot to report. The is 3 weeks old today- aka 31 weeks GA. He's up from his birth weight of 2lbs 5 1/2 oz to 2 lbs 9 oz. He is still having a few breathing/ heart rate drops, but the number have decreased.

link | posted by Beth at 1/08/2006 10:49:00 AM

Wednesday, January 04, 2006

He's off of the bili lights, his pooping is helping to keep the levels down. They put him on a different si-pap machine. He is also back on the nasel si-pap vs the mask type he was on. Still a little bit of haze on the lungs, but not enough for high concern. They are talkig about starting feeding him tomorrow, it all depends on how his adominal x-rays look.

link | posted by Beth at 1/04/2006 10:44:00 PM

Sunday, January 01, 2006

He's having some problems with his heart rate dropping down, but he manages to recover before the nurses can get to his incubator- they think it's because his lungs aren't doing the work that they could be doing. That is not necessarily bad- just that he's a week out of major surgery and he's focused on healing. Since the surgery was adominal, the docs were worried about pushing too much air into his tummy- but as the photos below show, he is back on the c-pap and he does have the tummy tube helping to remove the air.

link | posted by Beth at 1/01/2006 10:33:00 PM

Yes, I do have eyes

link | posted by Beth at 1/01/2006 10:20:00 PM

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